When Is Hospice Appropriate?

ComaPersistent vegetative stateSeverely reduced level of consciousness (obtundation) with abnormal muscle contraction (myoclonus)

After the first three days, other factors help determine life expectancy and hospice appropriateness. These factors include abnormal neurological responses such as no response to painful stimulation. In addition, increased age has been shown to affect the outcome, with the incidence doubling for each decade after 55 years of age.

Chronic Stroke: Death from a stroke can happen sometime after the initial attack. A stroke that leaves significant neurological deficits is sometimes referred to as chronic stroke or chronic cerebrovascular disease. With adequate medical care and rehabilitation, some people are able to regain some lost function. Others may not respond as well and will continue to decline in health, regardless of the intensity of care they are receiving. This is when palliative care becomes appropriate.

Acute Stroke: A stroke, as with any injury to the neurological system, takes time to manifest its full effect. The most progress occurs between the first three to four months after a stroke, according to the American Heart Association, adding full recovery can take up to two years. A stroke victim, therefore, will be given time to begin to recover before any prognosis is reached. If there is no improvement in neurological functioning after three days, the outlook for a full recovery is grim.

Unfortunately, stroke is the leading cause of death in the U.S. making the need for adequate hospice care for stroke victims essential. Determining whether someone is appropriate for palliative care following a stroke will depend on the severity of the effects.

Factors associated with increased risk of death from a chronic stroke include:

Dysphagia, or trouble swallowing, which can lead to malnutrition or aspiration pneumonia caused by inhaling, or aspirating, bits of food. If the person is receiving artificial nutrition through a nasogastric (NG) or gastrostomy (G) tube and is still showing signs of malnutrition through significant weight loss. Recurrent post-stroke infections including urinary tract infections without a known cause are also signs of a poor prognosis.

Symptom Management

Palliative or hospice care for an acute stroke or chronic cerebrovascular disease from a stroke focuses on symptom management. Because the neurological system is involved in the functioning of practically every other body system, the distressing symptoms requiring treatment can be very diverse.

Some of these symptoms include.

Immobility and or conditions may cause pain due to involuntary muscle contractions or spasms related to neurological damage. Aspiration pneumonia can lead to dyspnea. Nausea, vomiting, and constipation can be caused by a number of factors including medications and eating. Sores on the skin from immobility (bed sores) can be uncomfortable or painful. Anxiety, restlessness, and depression can result from damage to areas of the brain or from the dying process itself.

Accessing palliative care as soon as it becomes appropriate will ensure that symptoms are managed properly and will help prepare you for what lies ahead.